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Cornelia de Lange Syndrome (CdLS) is a rare genetic disorder that is present from birth. It causes such a broad range of potential physical, cognitive, and medical challenges that it is now known as the CdLS spectrum disorder. CdLS does not discriminate—it affects both genders equally and is seen in all races and ethnic backgrounds. The occurrence of CdLS is estimated to be 1 in 10,000 live births, but because it is so variable, it could remain undiagnosed. The Run for CdLS 5K and 2-mile walk events aim to raise funding and awareness for the CdLS Foundation and the community it cares for, including my son, Zach. Proceeds raised at the event will go to the Foundation and its incredible work. For more information, please visit www.CdLSusa.org.
