이벤트 정보
Thank you for participating in the National MPS Society Run/Walk, and Post Office Cafe's 33rd Annual 5K & 1K Fun Run. This event will raise awareness and funds for the National MPS Society.
In our community, the Walk/Run will be held at the Post Office Cafe in celebration of Mark and Casey Lessing. In 2010, Mark lost his 20 year battle with the disorder MPS IIIA. His sister Casey passed away July, 2016 at the age of 24. MPS and related diseases are genetic disorders that affect major organs in the body, including the respiratory system, heart, bones, and nervous system. Affecting mostly children, it is caused by the body's inability to produce certain enzymes. There are hundreds of children around the country waiting for a treatment and eventually a cure for these rare, progressive, and deadly diseases.
The National MPS Society's mission is to provide support for individuals and their families affected by MPS or ML. Our goals are to increase public and professional awareness and to support research. The Society's ultimate goal is to find a cure for MPS disorders.
이 이벤트에서 제공하는 레이스
Post Office Café 1K Fun Run
Post Office Café 5K Run
리뷰
공식 링크
인근 호텔 찾기 Post Office Cafe's 5K Run & 1K Fun Run
가장 가까운 이벤트
제휴 파트너
표시된 가격은 선택한 통화를 대략적인 비용으로 환산한 것입니다. 구매를 완료하는 동안 환율이 변경될 수 있으므로, 정확한 환율은 은행에 문의하여 확인하시기 바랍니다.
© Ahotu는 World's Sports Group 소유의 서비스 및 브랜드입니다. 저작권을 포함한 모든 권리가 보호됩니다.
버전: 9.25.8