ALSP Run N' Roll - Raleigh

Sisters' Hope Foundation and Cure ALSP are excited to introduce the 1st in-person 5k, 1-mile Fun Run and virtual 5K to support ALSP, a rare brain disease which affects memory and movements. 

The 5k and 1-mile fun run is a Walk, Run, Roll event for all ages, levels, paces and abilities. The 5k runners will be chip timed. Prizes will be awarded to the 1st & 2nd Place overall finishers; sponsored by Fleet Feet. 5k participants will receive a swag bag, race t-shirt, and an exclusive finishers medal for participating in the 1st in-person 5k to benefit those affected by ALSP. You don’t want to miss this Rock N’ Roll themed event. Dress the part with a themed costume, enjoy the music and invite everyone for a fun day all to benefit a great cause. Food trucks will be available for breakfast and lunch. This event will be held Rain or Shine.

RACE FEES:

EARLY BIRD Registration until August 25 for the In-Person 5K: $40 per person (EARLY BIRD Registrants receive a $10 discount and a FREE race T-shirt)

Registration August 26 - September 8 at midnight and on Race Day: $50 per person (No discount and T-shirt not guaranteed)

1-Mile Fun Run: No Cost (No t-shirt or medal)

Virtual Participation: $20 per person (no t-shirt or medal)

In person registration will be available at the pre-race packet pick up on Saturday, September 9 at the address below on Race Day morning from 7:00 am - 8:00 am ET.

RACE INFORMATION:

Address: Research Triangle Park 101 J. Morris Commons Lane Mooresville, NC 27560

Start Time: 8:30 am ET

Race Timing: Chip timing will be utilized to facilitate prompt and accurate results. Runners will line up in front with faster runners lining up first and walkers lining up in the back. Race will be held rain or shine.

Course Description: This 3.1 mile course is flat and takes place on the Fujifilm Diosynth Biotechnologies parking lot and the adjoining walking paths.

1-mile Fun Run: will be held immediately following the conclusion of the 5K at approximately 10:00 am. An announcement will be made 5 minutes prior to the Fun Run start. 

Awards: Race awards will be announced immediately following the conclusion of the Fun Run.

Beneficiary: Proceeds benefit Sisters’ Hope Foundation and Cure ALSP. Additional information can be found at https://www.sistershopefoundation.org. Any questions can be directed to [email protected]. 

Registration

5K Individual Registration: Available until midnight on September 8, 2023, but you must register by midnight on August 25, 2023, to be guaranteed a race t-shirt.

Day of Event Individual Registration: In-person 5K and 1-mile Fun Run registration on the day of the event will open at 7:00 am.

1-mile Fun Run: Registration will be available until midnight on September 8, 2023.

Virtual participants: Registration will be available until midnight on September 8, 2023.

Race Day Schedule

Packet Pick-Up starts at 7:00 am ET

Pre-race: Breakfast and Coffee Food Truck 7:00 am ET 

5K Start Time: 8:30 am

1-mile Fun Run: 10:00 am

Post Race: Enjoy Rock N’ Roll themed after part with entertainment and food trucks until 2:00 pm ET

Event Info

The 5K will start and end in the Fujifilm Diosynth Biotechnologies parking lot with a scenic 3.1 mile run through Research Triangle and the gorgeous walking paths. Aid stations and hydration will be available throughout the course.

There is no pace requirement so have fun and run, walk, roll, jog or casually stroll. This event is for all abilities. Wheelchairs and strollers are welcome.

Race Swag

In-person 5K participants will receive a swag bag, an exclusive race day T-shirt and a one-of-a-kind race medal. (T-shirt is not guaranteed if you register after August 25, 2023.) 

Virtual Participants

Anywhere! It’s your choice where you would like to run, walk or roll! 

Share your run with us via socials! Please use the hashtags #sistershopefoundation #CureALSP #ALSP #ALSPRunNRoll

Refund Policy

This event follows the standard running industry policy: All entry fees are non-refundable. We reserve the right to postpone or cancel the event due to circumstances beyond our control such as a natural disaster or emergency or as required to protect the safety of participants and staff. No refunds will be issued under these circumstances. We reserve the right to change the details of the event without prior notice. I understand that my entry fee is nonrefundable and bib numbers are non-transferable.

By submitting this entry, I acknowledge (or a parent or adult guardian for all children under 18 years) having read and agreed to the above release and waiver including the no refund policy.

About Sisters’ Hope Foundation

The Mission of Sisters’ Hope Foundation is to support and empower families impacted by Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) by:

educating the public to increase awareness around this rare diseaseadvocating for further research and funding to improve treatment optionsconnecting patients and families with this diagnosis to build community and supportproviding financial assistance and resources to those in need Through Sisters’ Hope Foundation, we envision a world where those affected by ALSP have support and knowledge, leading to a better quality of life and one day, the first survivor of ALSP.

ALSP is a rapidly, progressive neurodegenerative disease, typically occurring in the 4th and 5th decade of life but has been diagnosed as early as 1 year of age. Imagine a movement disorder and dementia which begins with personality and behavioral changes and ends with loss of speech, memory, and movements. Currently, there is no cure or FDA approved treatment for this rapidly progressive terminal brain illness. 

Learn more about Sisters’ Hope Foundation and ALSP: Sisters' Hope Foundation. 

Sponsors

Thank you to our sponsors!

Location & Investigation Sponsor: Fujifilm Diosynth Biotechnologies

Event Sponsor: Sisters’ Hope Foundation and Cure ALSP

Hypothesis Sponsor: Vigil Neuroscience

Prize Sponsor: Fleet Feet

Interested in race sponsorship opportunities please contact [email protected]. 

Proceeds benefit those affected by ALSP by providing support, awareness and a cure. Sisters' Hope Foundation is a non-profit corporation registered in the Commonwealth of Pennsylvania and a 501c3. Contributions to Sisters' Hope Foundation are tax deductible to the extent permitted by law. Tax ID# 85-4152247

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