Run for A-Rare-Ness & Wiffle for a Cure
Bieganie
3.1 mi, 6.21 mi
Marsz
1 mi
Informacje o evencie
For a Community. For a Cause. For a Cure.
Run for A-RARE-NESS
We invite you to come out and join us on Saturday May 3rd, 2025 for the 5th Annual Run for A-Rare-Ness and Wiffle for a CURE! A day full of fun with food trucks, bounce houses, face painting, yoga, vendors, and MORE!
We are on a mission to find a CURE for MPSI-Hurler Syndrome. MPSI is a RARE genetic disorder with a reduced life expectancy. Kids with Hurler Syndrome suffer from enlarged organs, obstructive airways, heart disease, lifelong pain with skeletal deformities, and much more. We need YOU! All proceeds benefit The Kennedy Ladd Foundation, Inc.
The Kennedy Ladd Foundation, Inc. is an approved 501(c)3 and provides an iPad, gift card, screen protector and case to Hurler patients (generally under 2 years of age) going into Bone Marrow transplant. We also fund research to find a CURE for MPS 1 and better treatment options!
Pennies add up to dollars! Every bit counts and if you can’t contribute prayers are powerful! Research costs millions and we are on a mission to find #CURE!
Please pray that we find a cure for MPSI. Please pray that Kennedy and Lincoln Ladd are the exception and live long, pain free, happy lives!
It’s not just monetary donations that count. If you can’t attend please sign up to be a virtual/ghost runner and we can mail you a shirt. But always remember...
Every Prayer
Every Share
Every Penny. Count!
The Kennedy Ladd Foundation
PO Box 932
Kingston TN 37763
www.kennedyladd.org
#withawarenesscomesacure #fightmps1 #cure2025 #RunForA-RARE-NESS
Wyścigi oferowane przez ten event
Masz 17 tygodni na przygotowanie
10K Run
6.21 mi
5k Run/Walk
3.1 mi
1 Mile Fun Walk - not timed
1 mi
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